e The Guide to Patient Involvement in Rare Disease Therapy Development Orientation Webinar

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Location: Zoom

On January 27th at 1pm ET, the Everylife Foundation for Rare Disease, in partnership with Biotechnology Innovation Organization, the National Health Council, and PhRMA, will introduce a transformational resource, the “Guide to Patient Involvement in Rare Disease Therapy Development." Join this special webinar to learn more about this new resource and how it can further embolden your engagement with partners within the therapy development ecosystem. To register click here