Weekly Webinar Series. Mondays April 4th, April 11th, April 25th and Tuesday, April 26th 2022.

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Location: Zoom

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The Boler-Parseghian Center is excited to announce that our Spring webinar series begins next week on Monday April 4th to continue weekly on Monday April 11th, April 25th and Tuesday April 26th. Registration is required   

The first session with students is just around the corner (April 4th), and they have a great program! So see you there! 

April 4– 2.00-5.00 pm ET.   Living with Rare.    

 

2.00 - 2.10.pm. Welcome. Dr. Kasturi Haldar, Director, CRND.

2.10 - 3.10 pm. Panel I. Public Policies of, by and for Rare Disease Communities.

Moderator. Adviti Bali ND 23. President Club RareND 

Panelists.  Megan Crowley ND ’19; Frances Fitzgerald ND’18, Gabe Donavan; Annie Hamilton ND ’26

3.10 - 3.30 pm. Panel II. Megan K. Crowley Award for Patient Advocacy.

John M. and Mary Jo Boler Rare Disease Research Award.                                                 

Award Presenter; Megan Crowley ND ’19.     

AwardeesAdviti Bali ND ’23; Camey Calzolano ND ’22; Bailey Perczak ND ’22.

Break 3.30 -3.45 pm.

3.50 -4.50 pm. Panel III. Know the Glow. Preventing Childhood Blindness.  

Moderator Megan Webber ND’90 Know the Glow.           

Panelists. Megan Webber ND’90; Adviti Bali ND ’23; Camey Calzolano ND ’22; Bailey Perczak ND ’22.

 

Additional Upcoming Sessions

April 11–Neurometabolic Disease                                              2.00-5.00 pm

April 25–Intellectual Disability                                                   2.00-5.00 pm                                        

April 26–Rare Tumors                                                                 2.00-5.00 pm

Visit crnd.nd.edu for more information.